About 12:30PM
Here I sit waiting for Jere to recover enough from the test. Every few minute the blood pressure cuff takes his pressure and every time an alarm goes off and it is low. First it was 91/48, now it is 88/48. There is a yellow line that I don't know what it means, I thought it was his breathes per minute but I hope not because it keeps going to zero ( and I can see him breathing still). His heart rate is jumping around but staying in the 50's.
I was going to stay with Jere as long as they let me. Them kicked me out right as they were numbing him for the test and brought me back in right after it was done. The nurse said that Jere has a great gag reflex. It took three tries to get the ultrasound thing down his throat. Jere said he could not swallow so the doctor had to push it down his throat. Thinking about it, it makes sense. They relaxed muscle that have myotonia those puppies are going to move for awhile. The doctor also said that surgery is up in the air. We met with Jere's neurologist Friday and we will talk to her about pros and cons of surgery and then Aug 5th ( a week and half away) we met with the surgeon and talk more about surgery. The doctor also said that the MRI showed possibly more than one hole. The PA that we met with for the results of the MRI didn't tell us that. The GREAT news is that there is only one hole. I guess Jere said that the doctor was very happy with the images he was getting on the ultrasound today. I can't remember now which way the blood was flowing, I think he said left to right, but some is going right to left as well. The reason it is hard to decide to do surgery now is because Jere has no signs or symptoms of a hole other that seeing the hole. The hole will wear out his heart faster if it doesn't get closed but we have to weigh the pros and cons.
There goes the BP cuff again lets see what the results are this time..........95/52. Pulse 63. now pulse is 73. Pulse back down to 58.
I'm so hungry. I could use a hamburger and fries. I'm too scared to leave Jere's side though.
Well that is scary. I just looked up what the yellow line on the monitor means and I was right it is his breathing, breaths per minute. Right now it is 15.
I'm writing this because I'm bored and so Jere can read it after he comes out of the sedation and wants to know how things went. I'm so stinky, I should've chosen a stronger deodorant. My body is all messed up, any hightened emotion and i sweat, then I get cold so my body kicks up the heat and i sweat even more. It really STINKS, get it stinks hahaha.
1:17 PM
The cuff is going again, and the results are....... 93/49 pulse is 60 and breathe is 12.
Breathing went back up to 14 and pulse is jumpy is low 60's
He just moved and pulse went into high 70's ans breaths were 17 but now they are back down to pulse 61 and breaths 14.
He speaks! "It's almost 1:30?" is all he says. When asked how he is feeling " good" is all I get before back to sleep he goes.
1:30
I was just thinking I'm documenting Jere's vitals so I need to know what they gave him. They did some local stuff in his throat and the sedative in his IV. The sedative was given in the lowest possible dose three times. They slowly gave it to him until it started to work. The name on the bottle is Bacteriostatic 0.9% sodium chloride and the bottle for the local says lidocaine hydrochloride 4% on it.
The cuff just went again, the alarm is sounding again 87/49 pulse 79 and breaths 17 Jere was moving then so now they are back to pulse 59 and breaths 11.
1:40
He is awake more now. The nurses where talking about cookies in the hall and Jere said " That ain't fair". He hasn't been able to eat since last night before bed.
I just heard the nurse talking at the nurse station. Saying room 21 ( that is us) has an interesting rhythm. Saying it looks like something, ( I didn't catch what she said). His pulse is 62 and breaths 6?! Now back to 11.
1:45
"I'm ready to go home" then back to sleep.
1:47
Cuff again 93/51 pulse low 60's breaths 14. " yeah, my BP didn't beep that time"
1:50
Try sitting/ moving up and looked horrible, white/greyish. Lay back down color came back, kind of. Pulse high 50's breaths 12. Starting to get restless, by restless mean tapping hands and feet.
When asked if bored get a head nod yes.
1:55
Nurse comes in ask about neasea Jere has none. One or two more BP then let us go. Took O2 off and O2 sensor. Pulse low 60's breath 13. " Man I felt so far out when fell to sleep"
BP cuff 99/53. Pulse high 50's and breaths 13.
2:03
" hey, what you been up too?"
He farted he must be feeling better:)
Pulse is high 50's and breath 16, nope now 10. Now 18.
2:10
Talking and ready to go home if only the nurse would agree. Still need another BP . Still looking kind of white " I just want to get up and get some food"
Nurse comes in to discharge. All good to go.
Last BP106/53 pulse 60 breath 18 ( while taking IV out)
2:45
We are home finally. He was able to walk to the car by himself. " I have a frog in my throat, do I sound hot?" " Ugh, I don't feel like driving"
He has drank water and eaten a fruit cup. Now he is doing spaghetti So all is well.
Wednesday, July 27, 2011
Sunday, July 24, 2011
Fullmer Camp 2011
This past week ( July 17-23) we were camping with my family. We had lots of fun. We went to Payson Lake, fishing, played in the river, played games, target practiced with paint balls and much more.
Jere and Alma went fishing, and actually caught a fish. Jere can careless about fishing but Alma wanted to go. When Jere started to gut and clean the fish Alma was quite sad. Alma ate some of it but I don't know when he will want to go fishing again. He is such an animal lover.
We went to the lake twice during the week, Monday and Thursday. On Friday we found out that there were two bears walking around Payson Lake on Thursday. They couldn't catch them so they had to empty the campground.
We took ALL 5 of the dogs with us. They did pretty good. The little kids loved them. Everytime we turned around a little kid was over by the dogs. Spy got sick, he ate something that did NOT like him. That was a nasty mess to clean up. With the lack of a shower and washer we had to throw all the blankets away and bath the dogs with baby wipes.
Jere and Alma went fishing, and actually caught a fish. Jere can careless about fishing but Alma wanted to go. When Jere started to gut and clean the fish Alma was quite sad. Alma ate some of it but I don't know when he will want to go fishing again. He is such an animal lover.
 |
| Almost in tears |
We went to the lake twice during the week, Monday and Thursday. On Friday we found out that there were two bears walking around Payson Lake on Thursday. They couldn't catch them so they had to empty the campground.
We took ALL 5 of the dogs with us. They did pretty good. The little kids loved them. Everytime we turned around a little kid was over by the dogs. Spy got sick, he ate something that did NOT like him. That was a nasty mess to clean up. With the lack of a shower and washer we had to throw all the blankets away and bath the dogs with baby wipes.
 |
| Bare |
 |
| Spy |
 |
| Tiny |
 |
| Kaiden, Bare,Spy, Tiny, Precious |
Wednesday, July 6, 2011
INDEPENDENCE WEEKEND
We had such a fun weekend. We started out down south in Goblin Valley and finished up in the north at Antelope Island.
We left Friday morning for the four hour drive to Goblin Valley. We stopped in Lehi at Trafalga to see a XD movie, Jet and Jim. Before we checked in at Goblin Valley we stopped at Temple Mountain Uranium Mine. It was so hot after being in the car with A/C. The mine was so high up we only sasw it from a distance. They had some cool run down buildings. After we were done with the heat we went to Goblin Valley and set up camp. As we were unpacking the car I noticed my shoe was broken. How was I suppose to hike with a broken shoe?!?!?!? So we finished setting up and then went into Hanksville. It was such a small town, no place to buy new shoes so we found some super glue to glue the soles back together. On our way back to Goblin Valley we saw a cool OLD tow truck. When we got back to camp I started dinner and Jere was going to fix my shoes. He couldn't get any glue to come out so he cut the tube open and THE GLUE WAS DRIED!!!!!! We were so mad, we spent that time and money for nothing. On our way back into Goblin Valley we had stopped at the visitor center and bought some post cards, bookmarks, magnet and Alma a t-shirt. While we were walking around in the visitor center I noticed they had duct tape. So while I was finishing dinner Jere went back to the visitor center to get some duct tape. It pretty well on holding my shoes together until on Saturday when we were in the slot canyon and the tape wouldn't stick so I finally just pulled the broken pieces off and thought I will deal with it.
Saturday morning we hiked in the Valley of the Goblins. It was so fun. We were going places that Jere would have to help us into. Jere would pull us up or block us from falling, he is the man. After resting for a little and having lunch we went to Little Wild Horse Slot Canyon. That was the coolest place. Being claustrophobic it was scary but so worth it. It was in the afternoon so it was getting so hot again. When we got back to camp it was so hot almost unbearable. Jere took some sleeping bags (that we weren't using because it was so hot at night) and laid them out in some shade cast by our covered table so we could cool off. We laid there while Jere read to us.
Sunday morning we packed up, then went to the Valley of the Goblins to hike some more before leaving to come home. This time we found a cave. It was the coolest cave we found the whole time. It went back and then turned. At the end we could look up and see the guy standing above us. After hiking about and 1.5 hours we left for home.
Monday we met Jere's family at Antelope Island for a picnic. While we were Alma became a Jr. Ranger. He had to pick up trash, and do some other activities to learn about nature. That afternoon we had a play-set raising party and BBQ. ( We got a free Rainbow play-set and needed help setting it up.) That night Dev and Naamah ( Jere's siblings) had brought some fireworks to light. Alma got his first lesson in lighting fireworks from Dev. He was taught how to light them safely and how to dispose of the safely.
It was a fun weekend.
We left Friday morning for the four hour drive to Goblin Valley. We stopped in Lehi at Trafalga to see a XD movie, Jet and Jim. Before we checked in at Goblin Valley we stopped at Temple Mountain Uranium Mine. It was so hot after being in the car with A/C. The mine was so high up we only sasw it from a distance. They had some cool run down buildings. After we were done with the heat we went to Goblin Valley and set up camp. As we were unpacking the car I noticed my shoe was broken. How was I suppose to hike with a broken shoe?!?!?!? So we finished setting up and then went into Hanksville. It was such a small town, no place to buy new shoes so we found some super glue to glue the soles back together. On our way back to Goblin Valley we saw a cool OLD tow truck. When we got back to camp I started dinner and Jere was going to fix my shoes. He couldn't get any glue to come out so he cut the tube open and THE GLUE WAS DRIED!!!!!! We were so mad, we spent that time and money for nothing. On our way back into Goblin Valley we had stopped at the visitor center and bought some post cards, bookmarks, magnet and Alma a t-shirt. While we were walking around in the visitor center I noticed they had duct tape. So while I was finishing dinner Jere went back to the visitor center to get some duct tape. It pretty well on holding my shoes together until on Saturday when we were in the slot canyon and the tape wouldn't stick so I finally just pulled the broken pieces off and thought I will deal with it.
Saturday morning we hiked in the Valley of the Goblins. It was so fun. We were going places that Jere would have to help us into. Jere would pull us up or block us from falling, he is the man. After resting for a little and having lunch we went to Little Wild Horse Slot Canyon. That was the coolest place. Being claustrophobic it was scary but so worth it. It was in the afternoon so it was getting so hot again. When we got back to camp it was so hot almost unbearable. Jere took some sleeping bags (that we weren't using because it was so hot at night) and laid them out in some shade cast by our covered table so we could cool off. We laid there while Jere read to us.
Sunday morning we packed up, then went to the Valley of the Goblins to hike some more before leaving to come home. This time we found a cave. It was the coolest cave we found the whole time. It went back and then turned. At the end we could look up and see the guy standing above us. After hiking about and 1.5 hours we left for home.
Monday we met Jere's family at Antelope Island for a picnic. While we were Alma became a Jr. Ranger. He had to pick up trash, and do some other activities to learn about nature. That afternoon we had a play-set raising party and BBQ. ( We got a free Rainbow play-set and needed help setting it up.) That night Dev and Naamah ( Jere's siblings) had brought some fireworks to light. Alma got his first lesson in lighting fireworks from Dev. He was taught how to light them safely and how to dispose of the safely.
It was a fun weekend.
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